Together We Are Stronger
Our Mission is to accelerate innovation and research to improve the quality of life for patients with FGFR syndromes.
What are FGFR Syndromes?
Born a Hero, Research Foundation is dedicated to studying 15 FGFR syndromes.
FGFR stands for Fibroblast Growth Factor Receptor. The FGFR gene makes a protein that is involved in cell division, cell maturation, formation of new blood vessels, wound health and bone growth, development, and maintenance.
HOW CAN YOU BE INVOLVED?
Events
June 26th - June 29th 2025
CCA’s Annual Family Retreat & Educational Symposium (In-Person, Bellevue/WA)
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