Contact Us

As a national and international non-profit, non-governmental organization, Born a Hero, Research Foundation does not give patient or medical advice. No material on this site is intended to be a substitute for professional medical advice, diagnosis, or treatment. Always consult your health care provider for medical guidance.

General Inquiries

For questions about Born a Hero projects, to be added to the Newsletter and Announcements List, to get involved, or to bring the ABC Kind Program to your school, contact the Born a Hero Team.

Genetic Testing

If you live in the USA and are interested in getting genetically tested.
Ellen Morgan.


FGFR Syndromes Research Registry

For questions regarding the research registry and the surveys, contact the Born a Hero Research Registry Team.

Registry IRB

For concerns on your privacy or management of the research registry, contact Born a Hero's IRB,
North Star Review Board.