Press & News

EVERETT HEROLD, OP-ED

Cutting health care cost, without limiting patient care
January 3, 2022

STATE OF REFORM

5 Slides-Gene Therapy and Rare Disease Treatment
October 26, 2021

EVERETT HEROLD, OP-ED

What does someone with a rare a disease want us to consider.
May 3, 2020

KING 5 NEWS

A child advocate wants us to embrace differences, Seattle Rare Disease Fair
August 22, 2019

SPECIAL BOOKS FOR SPECIAL KIDS

King’s Tale- Living with Beare-Stevenson
May 23, 2019

SPECIAL BOOKS FOR SPECIAL KIDS

Kate’s great life- Pfeiffer Syndrome
April 4, 2019

BAH RESEARCH FOUNDATION

Heroes- Reflection Contest Finalist Interview
March 30, 2019

SPECIAL BOOKS FOR SPECIAL KIDS

Emmy the Unicorn- Pfeiffer Syndrome
October 25, 2018

SPECIAL BOOKS FOR SPECIAL KIDS

Love for Lola- Apert Syndrome
June 21, 2018

SPECIAL BOOKS FOR SPECIAL KIDS

Beth’s Journey- Pfeiffer Syndrome June 13th, 2018

BAH RESEARCH FOUNDATION

Pfeiffer Syndrome Documentary
March 28, 2018

TODAY'S NEWS

Photo used for cruel meme
February 9, 2018