Get Involved - Newsletter
Do you enjoy writing? Maybe this is the volunteer opportunity for you! To get involved with the Newsletter email Melissa McGowan at [email protected]
Elevate Patient Stories
Create Post Content or Write Articles
Proofread
Amplify the Science Voice
Content Creation
- Write engaging articles about our advocacy efforts, upcoming events, and success stories.
- Interview patients, families, and professionals to highlight their voices and experiences.
Editing & Proofreading
- Review articles for clarity, grammar, and style to ensure high-quality communication.
Graphic Design
- Create eye-catching visuals and layouts for newsletters to make our updates stand out.
- Design infographics to simplify complex topics for a broader audience.
Distribution & Engagement
- Help manage our email list and ensure newsletters reach our community.
- Track engagement metrics to improve future newsletters.
Strategic Planning
- Contribute ideas for topics, themes, or features to enhance the newsletter’s impact.
- Collaborate with the team to align our content with advocacy and fundraising goals.
Why Join the Newsletter Team?
- Make a difference by amplifying the voices of rare disease patients and families.
- Develop or showcase your skills in writing, editing, design, or marketing.
- Be part of a creative team working to inspire and engage the community.