Press

MARIANA-INSPIRING OTHERS THROUGH HER RARE DISEASE

Spirit 105.3
September 13, 2019

GIRL WITH RARE DISEASE WANTS TO EMBRACE DIFFERENCES

KING 5 NEW
August 22nd, 2019

MAKING A DIFFERENCE FOR CHILDREN WITH RARE DISEASES

Seattle Children’s Hospital- Internal and External Website Article
August 8th, 2019

A KING’S TALE-BEARE-STEVENSON SYNDROME

SBSK Video
May 23rd, 2019

KATE’S GREAT LIFE- PFEIFFER SYNDROME

SBSK Video
April 4, 2019

KID INTERVIEWS HER COUSIN WITH PFEIFFER SYNDROME

Reflection Contest Finalist- HEROES
March 30, 2019

EMMY THE UNICORN- PFEIFFER SYNDROME

SBSK Video
October 25th, 2018

LOVE FOR LOLA- APERT SYNDROME

SBSK Video
June 21st, 2018

BETH’S JOURNEY- PFEIFFER SYNDROME

SBSK Video
June 13th, 2018

PFEIFFER SYNDROME DOCUMENTARY

BORN A HERO Documentary
March 29, 2018

PHOTO OF SON BECOMES MEME, MOM TAKES ON INTERNET

NBC News- Today
February 9th, 2018

JUDGE MY HEART NOT MY LOOKS- CROUZON SYNDROME

SBSK Video
January 29th, 2018

BELLA’S REALITY- PFEIFFER SYNDROME

SBSK Video
September 24th, 2017

“SPECIAL NEEDS”

“SPECIAL NEEDS”
LET’S NOT ENCOURAGE THIS TERM, WE DON’T HAVE TO CONFORM.

BORN A HERO- MARIANA’S STORY

Patient Worthy
May 5 – May 27, 2016

This will hit you right in the feels- BORN A HERO-Mariana’s Story, Part 1.

A diagnosis- BORN A HERO-Mariana’s Story, Part 2.

Embracing difference- BORN A HERO, Mariana’s Story, Part 3.

PRINCE AND PFEIFFER SYNDROME

Patient Worthy
April 21st, 2016

BORN A HERO’S INTERVIEW

Seattle Univision
June 19th, 2016