FGFR Syndromes- Collaborative Research Network


We had our first National/International conference in 2020 for the 20 FGFR Syndromes that we support. The conference included world famous scientists in the FGFR world. The audience consisted of

Pharmaceutical and Biotech companies, Researchers, Academic Institution leaders, and rare disease advocates. We had over 130 attendees. It was a huge success. Following the conference, we host monthly meetings with Born a Hero’s medical advisory board and other specialists. We have a strategic research plan and are currently working on prioritizing two research projects in moving forward.

2020 Agenda- FGFR Syndromes, Collaborative Research Network Virtual Conference

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